Wednesday, May 25, 2011

It's An Emotional Ride

Austin had his 15 month check up today. Like a soldier, I layer myself in armor before every doctor appointment. This may sound strange, but it’s how I keep my emotions in check. I don’t usually have to “armor” myself for well child visits with Dr. C because these are typically the most enjoyable (if I had to pick one) doctor appointments. I usually save all the emotional armor for one of the many specialists that we see.

Austin had a MRI on Friday. We went over the results at Austin’s check up. Dr. C said there are no tumors or anything of the sort causing pressure on his eye…which is good. The bad news is that the area of his brain that controls breathing(and other things) is “small for his age.” My immediate thought was…” Is he going to stop breathing all of a sudden one day? “ Dr. C said that it could have to do with the delays that come with Trisomy 21. The paperwork states that he has a “TINY arachnoid cyst.” There’s so much neurological wording that I do not understand. It was also noted that there are LARGE choroid plexus cysts. No measurements were given, so it’s difficult to know how LARGE they are. We’ve known about the choroid plexus cysts for a while, but I didn’t know they were large.

I could feel the tears welling in my eyes and I had a mini breakdown. I can deal with low muscle tone, texture issues, reflux and all the delays. However, the thought of something being “wrong’ with my baby’s brain is more than I can handle. Of course, Dr. C was empathetic and understanding. She didn’t seem too concerned, but assured me she’d call the Neurologist. Dr. C is one in a million. She called me around 7:00 tonight and let me know that Dr. B (Austin’s Neurologist) said the part of his brain that’s a little small for his age(that controls breathing) is often standard with Trisomy 21 and the delays. However, she wants to see the actual scans (pictures) of his brain to view the cysts. Dr. C emphasized that this is good news and that Dr. B didn’t seem concerned.

I’m so thankful to God that we have a “one in a million” Pediatrician. She didn’t have to call me tonight. She could’ve waited until tomorrow morning when she arrived at the office. But that’s just how she is and we consider her an angel.

Yes, I’m still worried…but whatever happens, I know we’ll deal with it like we always do. The fact the Dr. C and Dr. B aren’t too concerned it huge relief for us.

In other news, the DFW area was hit by awful weather and tornadoes last night. Golf ball sized hail attacked many cars ( including both of ours) and even knocked out windows and windshields (thankfully we were left out of that equation.) The area I live in (Valley Ranch/Irving/ Las Colinas) was hit particularly hard with hail. My poor husband has made 2 payments on his new truck and what do you know? HAIL DAMAGE. My car has quite a few dents from the hail too. What can you do? The good news is we’re safe and both have full coverage.

We also toured The Rise School this week. It was a heart-warming experience. I’ll write more about that later though. It’s been such a stressful and trying day…and thank God it’s over.


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