Monday, July 26, 2010

5 months

You came from heaven shining
Breath of God still flows from you
The beating heart inside me
Crumbled at this one so new

Austin turned 5 months old on Saturday. Where has the time gone? He’s for sure about to cut a tooth. It’s on the top row in the middle. His MiMi (Ryan’s mother) felt it the other day when she was visiting. Sure enough, I felt it the very next day and so did Ryan. I know babies typically cut their first tooth on the bottom row, but children with Down syndrome tend to get their teeth in a different order than most. The end result will be a mouth full of teeth, so I’m not going to fret at the order in which they decide to come in. The tooth is definitely causing him some discomfort. His schedule is so off. I don’t even think he has a schedule anymore. He goes to sleep at 8, wakes up between 12-3 to eat. However, he’s been waking up to eat and then waking up a second time. This is not typical for him and hope and pray it’s simply related to teething.

You're so amazing you shine like the stars
You're so amazing the beauty you are
You came blazing right into my heart
You're so amazing you are

Ryan and I will be married for 1 year on July 30th. He surprised me with an iPad for an early anniversary present. I’ve never owned an apple product before and I must say, I’m definitely a fan of how they operate. When we moved in April, I got rid of my book collection, which was more like a small library. We weren’t going to have room for my books and he promised he’d get me a Kindle if I got rid of my books. Of course, I kept some of my favorites, but I got rid of about 250 books. The Kindle doesn’t have a backlight and I like to read in bed at night, so he figured that he’s spend a little more money and get me something that does a lot more! I downloaded and read my first book on the Ipad in less than 48 hours. Ryan is so thoughtful. He knows how I get into books about Down Syndrome. He also bought me these books for our anniversary:

Yes, the iPad is amazing, but these books made me realize how truly thoughtful he is. He knows I research and read about Down Syndrome religiously(so to speak). I sat the books on the table and he picked them up and said, “Look at these cute kids on the cover.” Would he have said that a year ago? No. Down syndrome wasn’t really something that crossed our minds a year ago. Before I had Austin, I had the (ignorant) presumption that all kids with Down Syndrome looked alike. I was so wrong. They don’t all look alike. Yes, they have similar traits related to their appearance…but even then, not all of them have the same traits. When I see pictures of children with Down syndrome I’m usually overwhelmed with how beautiful they are. I see them in a different light now that I have a child with Down syndrome. Some of their eyes may have the same shape as Austin’s. Some of them have the same crooked pinky and extra space between the big toe and second toe. As strange as it sounds, these similarities give me comfort. It reminds me that we're not alone.

I hope your tears are few and fast
I hope your dreams come true and last
I hope you find love that goes on and on and on and on and on
I hope you wish on every star
I hope you never fall too far
I hope this world can see how wonderful you are

Happy 5 months, sweet boy! You're such a blessing and you've changed me in a way that I can't describe. Seeing your smiling face in the morning makes life worth living. I don't know what we did before you were here? You're my reason for waking up in the morning...even if I do wake up earlier than I'd like;-). I love you more than you'll ever know.


  1. He is definitely a precious and beautiful gift from God and lucky to have you and Ryan and his parents and to be surrounded with so much love.

  2. The teeth thing is fascinating to me. Eon has Ds, too and is 18 mos. now. He has his two bottom teeth and then an upper and lower molar on the left side and that's IT! I'm just grateful the molars are on the same side for chewing. :)

    Austin is a cutie, btw!